sharing my life experiences, reflections and insights as a mother, a writer, an Occupational Therapist, an unschooler, and and a spiritual being having a human experience

Posts tagged ‘spiritual beings’

Pulling the rug out from under me…And becoming who I am!

A large weight was lifting from my shoulders tonight.

I have been trudging through “the hard life”, waiting for the sh#t to hit the fan…

I have been living in fear of the rug being pulled out from underneath me, again!

Life has brought many challenges over the past 10 years leaving me feeling like I was living under a heavy weight of doom and gloom.

I stopped myself at work today.

I found myself thinking, “This is hard. I have to go back and see that patient and I have to walk through this large building and I am still figuring out how to get where I am going.”

I stopped myself and said, “Wait a minute!”

“This is NOT hard. I can do this. They are paying me good money to be here and to help them. I can sit in the comfortable building and walk these pretty halls, in this “palace” with a lap top that makes it easy to do my paperwork. I know how to be an Occupational Therapist and how to work with a variety of people and a variety of conditions and living situations. I know how to read through weeks of notes and write a progress report with one visit with the person. I CAN do this! I can ENJOY this!”

THIS IS THE GOOD LIFE

I AM living the good life!

I can decide how many hours I am working for these companies each week.

I can decide how much time I am spending writing.

I can decide how much time Don and I are spending growing our business and creating videos and pod casts and expanding our program.

I can decide how I spend my time.

It can be easy!

It really can.

I have removed myself from the drama of the hard job

I work PRN- as needed and on my terms.

I get to say, Yes I can work, and NO, I can not work!

I decide.

Don and I can present our introductory workshop to multiple places and people and gain more and more clients.

Life can be that easy.

I can enjoy what I do.

Fully enjoy helping people, without all the drama

Free of the drama of the healthcare- …sick-care system.

I am choosing a new path.

I can work in health care and stay out of the drama.

I can.

I can go in and do my work. And leave work at work.

I can then go home and get on with my life and my other endeavors and other pursuits.

I can work for my employers and do the work and come home and have plenty of time for the rest of my life!

Time to grow a thriving business with Don, helping families.

Empowering families to support their children and be better versions of themselves and improve their communications skills and their relationships, and their lives.

I can bring to other families what Don and I have brought to our family.

I can.

I am.

I am Gina

Here me roar.

I am a writer,

I am a mother.

I am an Occupational Therapist.

I am a facilitator and a coach.

I am a partner, a wife and a friend.

I am Gina.

I am creating my life.

I am.

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I AM GINA….One Week Later: Creating a New Life for Myself

I am

Powerful and creative energy

I am

I am ready to take my experience and skills and more to new work.

I am ready to use my skills as an Occupational therapist to begin a business in well- care, instead of sick-care.

Sundays are now writing time and planning time and goal setting time.

I can embrace my new Sundays.

I am also ready to see the $350 I typically earn (or used to earn) each Sunday, showing up in my life in new ways…

..so the bills can be paid.

I am ready universe.

I am open to new possibilities.

I am a writer.

I am Gina.

I wrote that one week ago

Wow

I have experienced so much since I wrote my post last Sunday.

I am home on Sunday and have time alone to myself in my own home.

Jason and Don are at my sister’s house 3 hours away for an agility trial.

I had an interview this week, a job offer and I set up another interview for Monday and got a phone call about another job.

Wow

I am amazed at how fast I am finding other work options. It used to take so long for that process.

Or maybe I was dragging my heels and that is why it took a long time

Now

I am

Creating

A new life for myself

There are many job opportunities in my area and my field right now.

I have found many job opportunities very close to my home!

I am looking for work at higher rate of pay and closer to home.

I am finding that!

I am amazed at how powerful creation is…

I am! Is such a powerful and creative statement to the universe.

I have known this truth, yet experiencing it happen this quickly and strongly in my life right now is just…

Wow

I didn’t realize it until I read my post from last Sunday.

And I read my post after I had written in my journal this morning.

After I have been struggling this week with feelings of “I should have done …” and “I wish I hadn’t done…”

I wrote in my gratitude journal and through writing, embraced the beauty of my mistakes.

I am grateful for this experience…and ALL that happened and unfolded- I have learned from it. It happened and hear I am now so much better Because of it!!!!

I am grateful for the mistakes I have made in my life!

We regret what we don’t do- not what we do.

I spoke up!

I spoke my truth!

I also wrote:

I am grateful- I spoke up for myself!

I am grateful

-I am not perfect

_I make mistakes

I am HUMAN

And being HUMAN is beautiful!

I am so grateful for this experience

I can “let it go”

And release all the “I should have done…”

“I should have not done….”

Blah blah blah

I am so grateful!

I am grateful for

Right Here

Right NOW

I AM GINA

I AM HERE NOW…My 500 Words: January 31, 2018

And entire month of focus on writing,

New habits formed

Writing first thing in the morning

Quiet, reflection time before social media and music

Returning to daily gratitude journal writing

Inner peace

Restless energy

Anxiety

Channeling my energy

To what matters most to me

Priorities

New music

Inspiration

Deep within my soul

Reconnecting

To myself

And to my loved ones

Road trip with Harrison and my parents

My first born

The spirit who initiated me into motherhood

My practice child

I am my own harshest critic

Jan Luther

EFT and The Ego Tamer Academy

New opportunities

To explore

Alongside Don,

My soul mate

United together

With one vision,

Together

We are ten times stronger than

The sum of us alone

Shouldn’t you be in Charlotte?

The magazine spoke to me

Back in 1992

Sitting in my kitchen in Whitehall

Pennsylvania

Our paths

Destined to cross

United

As one

May 14, 1994

Here

I

AM

NOW

Living in the present

Pulled myself up

And out of the muck and mud

Raised my head out of the water

Learned to not just tread but to swim

To cross over to the other side of the lake

Feeling our feelings

Living through the experience

Stronger only after

Having gone through it

And come out on the other side

Many puddles along the way

Some deeper like oceans

With strong currents and…

Waves

Today

I

AM

Here

NOW

the present is a gift

Yesterday a canceled check and tomorrow a promissory note…

All we have is now

Right here,

Right now

What is the name of that Van Halen Song?

Jesus Jones sings Right here, right now

Van Halen sings Right Now

Music

Feeds my soul

Connects me to my inner self

My higher self

My

TRUE

SELF

i can’t stand to fly

I’m not that naive

I’m just out to find

The better part of me

I’m more than a bird, I’m more than a plane

I’m more than some pretty face beside a train

And it’s not easy to be me

Wish that I could cry

Fall upon my knees

Find a way to lie

About a home I’ll never see

It may sound absurd, but don’t be naive

Even heroes have the right to bleed

I may be disturbed, but won’t you concede

Even heroes have the right to dream

And it’s not easy to be me

Up, up and away, away from me

Well, it’s all right, you can all sleep sound tonight

I’m not crazy

Or anything

I can’t stand to fly

I’m not that naive

Men weren’t meant to ride

With clouds between their knees

I’m only a (hu)man in a silly red sheet

Digging for kryptonite on this one way street

Only a (hu)man in a funny red sheet

Looking for special things inside of me

Inside of me

Inside me

Inside me

Inside of me

I’m only a (hu)man

In a funny red sheet

I’m only a (hu)man

Looking for a dream

I’m only a (hu)man

In a funny red sheet

And it’s not easy

It’s not easy to be

Superman (It’s Not Easy)

Five for Fighting

Wonderwoman

I

CAN

FLY

My spirit

Can sour high

I am finding it easier to be me

I am finding comfort

In my own skin

The challenge

Is living in this human body

The challenge is letting my spirit shine while occupying this human space

The challenge has been connecting my true self with my human self

I AM HERE NOW

Depression: Trudging through the mud with chains on my back while trying to keep my head above water

Here comes the sun

It’s been a long, cold winter

When I look back to when I have been depressed, I see sadnesses but there is so much more to it then that.

Life becomes a chore, all of it. Getting through each and every day is exhausting

And I look forward most to going to bed at night and sleeping and being in the quiet

But when I wake, I don’t feel refreshed, I feel tired and want to keep sleeping

Getting up is challenging

Getting up and starting my day takes a lot of effort

Leaving me with a half empty tank for the rest of my day

And some days, getting up takes nearly all my tank and so I am left running on fumes all day

Until I can go to bed again.

I manage to do the essentials, feed my children, feed myself

When I am depressed, I eat, too much

Trying to find comfort in food, but the comfort never comes

Leaving me feeling heavy and disappointed further pushing me down

I manage to wash clothes, I like doing laundry, the only cleaning task I truly like

Something about the simplicity of laundry and the reward

Sort the colors, fill the washer, add the soap and turn the dials

I get myself and my kids to the things we must do, are committed to

I get myself to work and get through the day

I don’t enjoy work very much and it feels like WORK

There are moments of pleasure and times where I feel good at work, work gives me a. Feeling of accomplishment

When I am working, I feel competent, because I have been an Occupational Therapist for 25 years

And I know the routine

I complete an eval, setting goals and then reassess them 3-4 weeks later and see the progress, or lack of it

And when they have reached their maximum potential, I complete the discharge paperwork with reassessment again.

It is logical and familiar.

I am a good therapist and I know what I am doing.

Yet, i have many moment of “I don’t want to do this anymore”, seeing all the flaws in the system,

And the problems that need fixing and it frustrates me beyond belief.

Yet while I am at work, I probably am functioning my best.

Home

Thinking about it now, recalling how coming home is always challenging when I am depressed,

I think it is because I come home to “disappointment”

Disappointment in myself for all the things I have NOT been doing in my time away from work

You can look at the menu but you just can’t eat

You can feel the cushions but you can’t have a seat

You can dip your foot in the pool, but you can’t have a swim

You’re the fastest runner, but you’re not allowed to win

You can see the summit, but you can’t reach it

It’s the last piece of the puzzle but you just cant make it fit

The doctor says you’re cured but you still feel the pain

Aspirations in the clouds but your hopes go down the drain

There are moments of joy, playing with my youngest and engaging with all my kids.

Yet there is this dark cloud over my head the whole time

Just when I think I am pulling myself up and out of the muck and mud,

Something happens creating more challenges in my life

Causing me to fall back into the mud.

Don is my rock, steady and always by my side.

Yet, when I am depressed all I see are his flaws

I expect him to disappoint me and that is what I experience

This is a new reflection, a new realizing that I am just now fully realizing

As I listen to Peter Cetera sing, The Glory of Love

DEPRESSION

Have you ever seen the rain coming down on a sunny day?

I always thought if you were clinically depressed, you wouldn’t have any moment of joy

I always told myself, I wasn’t really depressed because if I was really depressed, I would not be able to go to work, jut like depression is portrayed on television.

I wouldn’t be able to function at all, that is real clinical depression

Those people have it bad

I am still functioning.

It wasn’t until I came out of it, that I could look back and see how depressed I was

It didn’t matter that I was still functioning, I was barely functioning

I was barely getting by and it was painful

Often physically painful with aches and pains, throwing my back out to the point of not being able to move

Many trips to the chiropractor and other doctors for a variety of illnesses

And then I would get sick, stay home from work sick and it would take a long time to get better or I would relapse

Looking back, I see that this happened in college, often, sinus infections that just wouldn’t go away

Mood swings

All my life I have experienced big mood swings

When I went to college and learned about bipolar disorder

I wondered, Is this me?

Yet, I don’t experience mania

Not full on mania

It was years before I learned about hypomania

I think I learned about it from my brother and his bipolar diagnosis

From that time, I began to wonder about myself again and the possibility of Bipolar 2

I went to a psychiatrist after I had been on an antidepressant for a long time, 8 months or so, prescribed by my primary doctor

Because I finally took myself to the doctor and told them I needed treatment for depression

So by the time I went to the first psychiatrist, I was having nearly all the side effects from the antidepressant and I was in a state of hypomania but beginning to look more like mania

The doctor diagnosed me with depression, removed me from the medicine showing me how I was having all the side effects from it.

And then

She declared me cured

I knew I was not cured but hoped that I didn’t need the antidepressant anymore

And I also worried that I would fall back into the depression again

I was good for a while, for another few months

Until I slowly began sinking again

So slowly, depression creeping up on me like a shadow in the night

Realizing it but naively thinking along the way that

THIS was the low point and surely I would pull back up

Sinking further and further

Finding a doctor again and trying a different antidepressant and going to a new psychiatrist

Because I wanted to make sure the medicine didn’t cause mania because

That can happen with bipolar disorder, including bipolar 2

I had been reading and researching becoming more and more convinced that this was my proper diagnosis

And going to the psychiatrist, to the expert, to determine if that was the case

Yet, she diagnosed me with depression

And I got tiered of paying twenty dollars cash each visit and not happy with her

Challenged by the noisy fan because the building’s air conditioner was broken and she had a soft voice and an accent

And my hearing is not what it used to be and it was a challenge to hear her words

And a challenge to be there with her asking dumb basic questions

When I had dug so much deeper with all my purists in EFT and alternative modalities and inner work

Luckily, my primary has continued to prescribe my medication and I don’t seam to baving side effects

I wonder about mania vs hypomania

I realize that it would have been good to continue to go to the same psychiatrist so manybe she could have seen the difference in me,

Why?

To diagnosis me properly

Whatever

I have done that for myself

I am more qualified to do it

Which is sad, really sad that the mental health system has failed me

I intended to work in mental health when I was in college studying Occupational Therapy

We had an entire semester plus dedicated to mental health and level I and level II fieldwork in a mental health setting

Only finding traumatic brain injury and a acute rehab pulled me way from my interest in pursing a career in mental health

Here I am

All these years later

Discovering that the doctors don’t always do the best job at diagnosis

The psychologists and psychiatrist with their MDs and PhDs, all those years of school

Didn’t help me

My own personal education, experience, research and inner work and trial and error with a variety of approaches

Has led me to diagnosis myself

I would have been the last person to say this is valid,

I am biased, this is why I went to the professionals in the first place,

I know I am no t supposed to diagnosis myself and my degree does not allow me to even make such a diagnosis.

They were supposed to be the experts

They first failed me with my children, especially my youngest son

In getting him help for his anxiety and challenges that affected his every day life

Yet, I find myself needing to say, I mean no disrespect for these professionals and they are essential in the system

And I KNOW they help many, many children and adults get the help they need.

And yet, there are those who are misdiagnosed and those who fall through the cracks of the system

Those who don’t get the help they need because of costs and insurance, bad insurance or no insurance

Or no qualified providers in their insurance plan

WE MUST ALL TAKE CHARGE OF OUR OWN HEALTH AND BE INVOLVED IN THE PROCESS

As an Occupational Therapist, my role is to facilitate my patient’s return to a higher level of independent functioning.

I facilitate, but I can not do the work for them and if they are not motivated and don’t make the effort, there is nothing I can do to make them better.

“Man, through the use of his hands, can influence the state of his own health”

The quote is from one of the founders of occupational therapy and something I learned in freshman year in a Theory of Occupational Therapy class. I learned about many different theorists yet, that one quote is what has stuck with me.

That quote is what motivated me to help my daughter learn to knit and crochet when her OCD was so severe that it crippled here in her daily life. And what drove me to engage her in Sudoku puzzles and other tasks to help calm the anxiety that was rampant in her Brian causing havoc in her life and in ours.

I have learned that I must go to the doctor and get their advice AND do my own research, go to the alternative practitioners and gather all the resources and information and advice

AND then I must decide what to take in and what to discard in order to maximize my level of independent functioning.

BUT WHEN I AM DEPRESSED, IT IS REALLY HARD TO DO THIS!

I KNOW what I need to do much of the time, but making the decisions to do it and taking the action is challenging.

It can be paralyzing to know what I need to do and not be able to make the decisions to do it.

To an outsider it looks so simple, just do it,, just call the doctor and make the appointment, just get up 30 minutes early and walk every morning. Just go outside once each day and do grounding exercises, just write in your journal daily.

Sure I KNOW I need to do these things and at times, I can do them, once or twice,

Trudging through the mud with chains on my back, while trying to keep my head above water

Yet, most of the time, I fail to do these things or fail to do them more than once or twice in a row. I spend far more time telling myself I should do these things and feeling like a failure for not doing them, calling myself lazy for not doing better.

My 500 Words: In the Silence

Silence

Sitting in my living room with a hot cup of tea

No music

Just me and the keyboard

Words

Coming to me slowly

As i take time for reflection

Before looking at social media and before

Diving in to the tasks of the day

In the silence

House noises, creaks and the fan on the wii, I’m guessing

The cat moves about in these early morning hours

It’s 6:17am

WEnt to bed early last night, exhausted

Busy weekend

Working and preparing for his 9th birthday party

Making a multilayered cake with strawberries and blueberries

Gingerbread men and icing to decorate along with organic, all natural candies

An afternoon of fun

Kids running a bout the house

Joined in by Rosa, via skype, his online friend from Ohio

And then Abby joined us via FaceTime as well

Opening presents with 2 iPads to bring them here virtually

Pictures of Jason over these pat 9 years on the walls of our kitchen

Smiling, laughing, joyous Jason

I stop to wonder how many words I have written

My WordPress app does not keep count

Making writing playlists

Music speaks to me

Inspires me

Motivates me

Brings me to life

Writing in the silence is a challenge

Going within

Quieting the anxious mind

God time….God time

Meditations at Unity with Randolph Wilkinson

Connecting to my inner soul

The silence allows me to dig deep, to reflect and be alone in my thoughts

Peaceful and yet, unsettling in a way

In the moment

Now

Taking in my surroundings

Noticing

The silk plant Don bought me for an anniversary

The balloons hanging up from Jason’s birthday party

The way the light from the floor lamp hits the ceiling

Looking for ladybugs

Because they flock to the light in the spring an the fall and when it warms up in winter

Winter

Big snowfall, snow days, making a snowman, snow person

Eager to put my earbuds in to listen to my new playlist I created

While sitting in the bathroom

Plants growing

We have had them for a long time, gifts from when Jason was born or when Don had his heart attack

I often forget to water them but they are still alive,

I think it is time to add new soil to help them grow and flourish

New soil

Fresh starts

The house is so clean

Awesome husband who took care of things while I worked

Cleaned the house, made the cake and cut out the gingerbread men

Enjoying my work more now, enjoying talking to people

People

How many people have I interacted with in my 25 years as an Occupational Therapist

So many different kind so people

Interesting lives and personalities and beliefs

It amazes me how different going to work can be

When I am depressed compared to now, hypomanic

Fully alive and engaged, manic?

Doesn’t matter how I label myself

As long as I take time for reflection

Go within

To connect with my soul and my true self

To be the greatest version of the grandest vision every I held about who I am

Gratitude January 19, 2018

I am grateful for…

Ed Sheehan

Music

Earbuds

iPads and bluetooth keyboards

Waking up early before the sunrise while everyone else sleeps

Sitting in my living room with hot tea, music,

Writing

I am grateful for Jan Luther, EFT, Reiki and all the amazing people I have met in my life

All the wonderful friends who have helped me grow and

Become who I am

Playing in the snow

Teaching Jason how to roll a snowball to make a snowman, snow girl, named her Mary Poppins

Sledding down our driveway and our yard

Laughing

Remembering times with my older children in the snow

Walking up our street, to the stop sign with Jason

And it was like yesterday that I did that with Harrison, when he was maybe 4

Watching my children grow

Being a part of their lives, learning and growing alongside them

Enjoying the journey, our homeschool journey, our unschool journey

Our learning through living journey

I am grateful for reflection

Pictures, videos, memories, reminiscing, celebrating, birthdays

And holidays with family, Thankmas, the years spend on the lake at my parent’s house on Lake Murray

Time with my niece and nephew, my children growing up with their cousins

Family reunions at Red Top Mountain, Georgia with the Elefante’s

Sending prayers for my aunt, her husband and son and my mom

The other side of depression…

Hypomania, creativity, bursts of energy, enthusiasm, ideas….

So many ideas, dreams, aspirations, goals, desires

The anticipation of something great

Living life right

Now

The present, being present, the gift of life

All those who have touched my life

My college friends

All the places I have lived, Flanders, NJ; Canton, Ohio; Bethel Park, PA; Whitehall, PA

Elizabethtown College

Charlotte, NC

the ad in my OT magazine, “Shouldn’t you be in Charlotte?”

Facebook and reconnecting with high school friends, lost friends from all the places I have lived

Cousins

My South African pen pal, Zurina

Meeting her after loosing touch for like 20 years

It was like we had always been friends, so much in common

Despite living so far away from each other when we met as pen pals in the 80s

Connection

I am grateful for my life

Cuatro De Mayo: Celebration of 5 years of Rebirth

On Wednesday, May 4, 2011, my 51-year-old husband suffered a massive heart attack in our home, coming in from moving the lawn with a weird pain in his upper back on the right side which later traveled up his neck and around his ear.  His RIGHT arm was cold and clammy. Despite, my years of CPR training required for my work as an Occupational Therapist, it took me a while to realize that this was indeed a heart attack. His symptoms were atypical. It is usually the left arm and later, the doctor told him, “you had a heart attack like a woman”.

I remember searching in the basement for my bag from when I worked in home health care- over 5 years earlier- for my stethoscope and cuff.  I remember his pulse was faint and slow. Looking back, I don’t know why it took me so long to call 911.  Don had no idea he was having a heart attack.   I finally called 911 and frantically searched for aspirin that I knew we didn’t have when the 911 operator asked if we had any aspirin.

About 5 minutes after the medic arrived, Don went into full cardiac arrest.  It looked like he had a seizure and he became unconscious.  I remember the other medics arriving just as this happened and remember them rushing us out of the living room where we all had been standing and watching as Don went into full cardiac arrest.  I recall walking the children around the corner into the kitchen and sitting on the steps and I began tapping (EFT).  Looking back, I believe the only way I was able to do this was that Don’s spirit was alongside me.

I could hear the medics and understood everything they were saying.  I listened intently to them as I made an effort to comfort my kids.  They used the defibrillator and I could hear them say,“he has a pulse but it is faint”.  If memory serves me right, they used the defibrillator 3 times while he was in the living room before they moved him out to the ambulance to get him to the hospital.  He was in ventricular tachycardia when they left and his face was dark blue. 

 I am forever grateful to the Robinson’s Volunteer Fire Dept. and that medic who stayed with me and asked me, “Do you have someone you can call?”  

My mind went blank. Who should I call?  He asked about family or friends.  I had many friends but tried to think of someone who lived close.  I then though of Lia who lived only about 10 minutes from me and called her and her mom took a message which she quickly got to Lia.  Lia arrived quickly and drove me and the kids to the hospital.  The medic offered to follow me to the hospital, but I knew I needed someone else to drive.  And then Lia could stay with the kids.  As I type this 5 years later, I can picture it like a movie in my mind.  I remember Lia’s calmness and her suggestion to drop me off at the emergency room entrance and then she went to park the car with the kids.  I vividly remember walking into the hospital and asking to find a bathroom first!  I wrote a post on that one.  Then I came out and asked where he was.  I remember standing just outside a small room/ ER area and the doctor telling Don, “you had a heart attack” Don was awake but did not see me and gave the doctor a crazy look when she told him he had a heart attack.  They told me they were bringing him to the cath lab.That all seamed to happen in less than a minute.  They rushed him upstairs and I never got to say anything to him.  He has no memory of that experience.

The next 2- 3 hours were the longest hours of my life. They first brought me to the cath lab floor to a very small room to wait.  I told them that my friend would be coming up with my three kids and was there somewhere bigger we could wait.  They then brough me to the cardiac cath waiting room which was empty due to it being after 6pm.  The nurse or someone had told me it would be about 2 hours and when that time passed, I started to panic.  And Lia, with her calm sense of problem solving called the front desk, or maybe she suggested I do that,finding the number for me and later we learned, that they did not realize we were waiting there because usually after hours, they have family wait in one of those small rooms like they first brought me to.

We watched Idol as we waited because that is what we would have been doing at home. We had been watching American Idol as a family for a few years. Abby needed the distraction.  We ate peanut butter crackers from the vending machine for dinner.  Lia had lots of change on her.  She really was my angel throughout this experience and I don’t know how I would have done it without her. 

You can follow the rest of the story below. 

I will now share a post I started sometime after he returned home from the hospital. This post  was dated December of 2011 before I updated it.   It is a post that I started, but never finished nor shared.  I am sharing it now as we celebrate: Cuatro De Mayo, Don’s 5th anniversary of rebirth. 

I began journaling through the experience of my husband, Don’s  heart attack through Facebook posts.

I began the posts as a way to quickly update family and friends about Don.   I later realized that the posts could also serve as journal entries for my “in the moment” feelings and thoughts.

So now, just over 12 weeks later, I am looking back on my Facebook posts and will share them here.

Note: It has been nearly 5 years since Don had his heart attack.  I started this post copying all my posts from May 4 through May 10 including a blog I wrote.  Now I want to add the remaining posts for May 11- 16 to include  all the days he was in the hospital. But I have to figure out how to do that! So until I do, I will share it as it is.

This is a chronological listing of my Facebook posts. When I first did this, I went back and even included my comments in reply to other people posting to me. I left the posts “as is”including mispellings.  I added some things for clarification in parenthesis.   I also have a few times summarized a post like a conversation with Harrison that we had on Facebook. When Don had a heart attack May 4, 2011, Harrison was 13, Abby was 9 and Jason was 2.

May 4     8:56pm    

please pray for Don. he had a heart attack and is the hospital at Presby Main. all here right now. he’s in cath lab..talked to nurse waiting to hear from doctor.

May 4     10:10pm

Don is stable. waiting to go see him

May 5     4:23am

don is doing better but still in CCU and will be there several days. I Got to see him Ad talk to him and then we came home.kids did not (see him). just called to check on him. he’s improving. will know more later . going back to hospital soon. thanks for everybodys prayers. keep praying

May 5 at 7:29am

here with Don. he’s improving. in CCU all today. he can eat now. feeling some relief

May 5 at 9:07am

Thank God for 911 and the medics with Mint Hill and the other station. and the Cardiologist and nurses and team here at Presby. so glad I live in a big city. and all my friends and family and being here talking with Don and knowing he is improving.

reply to a comment:  Thanks Michele. Holding up ok. He is talking and eating and joking. Still in Cardiac care unit for t least a day or two and then to step down unit.May 5 at 10:38am ·

May 5 at 3:36pm

trying to figure when to go to hospital again and dinner for my family (with all our food issues)

reply to comments and friends offer to bring food:

You guys are awesome. I know Leslie mentioned shopping. There are things at Trader hoes (Joes) we need. We can eat some wheat but we have been eating gluten free and my biggest concern is Abby and not changing what she has been eating too drastically. She has been gluten and egg free and the other big thing with her is no preservatives and artificial colors…
Rice and potatoes and vegetables. Potatoes of all kinds…fruit is great for H and J. They eat a lot of fruit! And we do eat Ezekial Bread…found at most stores in frozen foods.

And Abby loves meat. Yet with her OCD /abxiety issues I am not sure what she will eat that others have made. She still has not been able to eat out.
I am so happy for meals right now cause I an not sure how I an getting through this other than this is far better than the alternative.May 6 at 4:44am ·

I am trying to ask for help (not easy for me) cause the other thing I may need…and right now I have my parents here til sat and then my sister in law comes in Fri – today thru Tuesday. Will be help with day to day at home…cleaning up…for those that k ow me, housework is not my thing. I love doing laundry but other than that…
I an trying to think ahead cause I know it will be great with my family…my sister in law is a nurse but she lives in St. Louis and so when she leaves…is likely to be about when Don comes home and right now that idea overwhelms me.
I am taking it one day at a time. I an just trying to reach out because that is not something I do well. And ask for help when I feel strong enough to ask for help (cause asking for help aibt easy fir me!)….but man am I learning fast!May 6 at 4:50am

May 5 at 6:18pm

back with Don at hospital. he continues to improve.

May 5 at 9:28pm

a picture of Abby and Olive- Olive in Abby’s ballet skirt

May 5 at 10:50pm

loves my family and friends. don – I love you. healthy healing heart ..tap tap tap

reply to the comments:     Thanks everyone! You know I love prayers in every form and every religious or non perspective! And healing energy and all of it…its all energy I think its all helping. In so many ways its amazing he is still here and improving.May 6 at 4:53am

May 6 at 5:08am

I would like to post a picture of my mother and also one of Don and I….can’t seam to find many pictures other than of my children…May 14 is Don and my 17th So glad my honey is still here with me….just trying to do what I need after a good 5 hour rest , while everyone sleeps… My new mantra”the past is behind me… only look and move forward”

May 6 at 5:14am

Dancing with my love at a family wedding Abby about a year asleep in my arms.

(changed my profile picture to this picture of Don and I dancing at a wedding with Abby asleep in my arms)

May 6 at 5:47am

one more source of help could be friends coming to be with kids in waiting room while I an with Don. we are going to hospital later

May 6 at 12:13pm

whoever can help me buy meeting me at hospital to be with the kids in waiting room while I am with Don. call me

May 6 at 5:24pm

thank you Lonna and everyone! anyone who can meet me at waiting room to hang with the kids over the next few days

May 6 at 10:51pm

having a good night after a rough day..fatigue hit me today. sister in law angel arrived. Lonna angel met us at hospital…talked to more friends. dons improving. hoping to sleep more tonight. Needs: taking trash to dump. strong person to lift battery so we can put lawnmover away

reply to comments:  Rough day for me. but Don is doing well…improving well.May 6 at 10:56pm

later reply to comments:  Thank you all. forgive my impersonal reply. FB and my BB are helping me through. I did sleep a good stretch. The adreneline high I was on, has ended to some extent although when I wake up, I figure I need to get out of bed and do something cause I will likely not fall back to sleep quickly. and need food and waterMay 7 at 4:43am

one more:  plan to go back to lay down in a bitMay 7 at 4:43am

May 7 at 4:41am

Slept about 11:30 til 3:30 woke with some bizarre violent dream. Called hospital, don is doing well and sleeping Yea! and he relieved his bloated feeling earlier (you know I work in health care and so I may come across weird with what I post).
The Presby nurses are awesome and answer all my questions cause I need to know as much detail as possible having an anatomy background and all.
J ust wish I could be at hospital 24/7 but it feels good to be home and be here for my kids too. We are all sleeping in my room and have gotten all to bed within 30 minutes or so once we are up there. Feels good to have them close.

reply to comments:   “Thanks Kamilla he is doing well and improving yet it will be a slow recovery and he has another artery with blockage that they have to reasses and in one month check for permanent heart damage. (figure you may understand some of this being a nurse). Getting lots of great help right now.May 8 at 9:55am ·”

May 7 at 5:00am

I need to get real organized real fast. has any one heard about or had experience with Inclusive Health.org? I was told it was a state program to get insurance for anyone. we have a major medical plan covers hospitalization at 80% but no follow up coverage and no coverage for cardiac rehab insurance agent told me to contact them and they will cover anyone.

May 7 at 5:20am

went to inclusivehealth.org NC sponsered company for coverage. went to find a local agent and list is very long for Mecklenburg County…anyone have any experience, know of anyone who has used them or an agent?

May 7 at 6:22am

found a rep in Mint Hill, sent a message. Feels good to be getting some of these things done. more sleep later in day. food and drink got rid of headache, time talking with my Dad. guess time to shower while everyone is still sleeping. plan to go to hospital by myself today once Jason is up and settled. going to let him sleep as long as he needs after two difficult early mornings. breath…..

comments:   Don should get PT today and I really want to be there when they come byMay 7 at 6:22am

comments:  “the past is behind me, keep moving forward”

May 7 at 6:22am

May 7 at 1:34pm

got to spend time alone with my honey. he got to sit up in a chair and walk to toilet. he is progressing well. he got sleepy and needs rest.

reply to comments:  “We appreciate all the prayers and well wishes and I a. Happy to let everyone know how he’s doing. Don’t mind people asking either.May 7 at 2:23pm”

reply:  “Thank you. He had stints put in right away. We won’t know if he needs more for a few months. He has to recover before they can even see how much damage was done to heart…that will be a good month before they can check that.May 7 at 11:09pm”

May 7 at 4:09pm

home with my family…my parents left. have my wonderful sister in law here. my house has. never been so clean and we have clean laundry! kids have had playmates. will go back to see don. he did sleep some

reply to comments:  “Thanks Joyce. Helps to hear that. Happy Mothers Day to you. We have lots of positive thinking going on. He lived and that is all that matters right now…he survived that..we can get through anything. Best mothers day gift ever…my husband alive and doing well.May 8 at 9:53am

-May 7 at 4:51pm Harrison uploaded a photo of Don and I (more recent photo) because I wanted it for my profile picture

May 7 at 11:12pm

we all went to see Don tonight and he was feeling much better and had slept and got to sit in a chair and visit with us. it felt wonderful. kids made him pictures. we love you Don-daddy!

May 7 at 11:20pm

I have the best mothers day gift ever…my husband is Alive and improving and I get to go spend time with him early tomorrow. challenges bring perspective …I am so grateful

Inquiry about if Don is  still in same room-

My reply:  “Yes but he may be moving today in morning don’t know when. But will move to cardiac step down unit. He apprecited you coming and is ok with visitors…he wants the distraction. Just short stay esp if he seams sleepy. He has not slept much. He slept best yesterday and was doing real well last night for our family visit.May 8 at 2:50am”

May 8 at 3:14am

just talked to Dons best nurse…Sharon we love you! and I am feeling relief. I can bring him any foods. she will get social work consult for us. she understood what probiotics are. Ahh……and she was there when the other nurse looked at me H and J and said “no children under 12 allowed”- and let us in. Daddy needs to see his kids and they him…its part of what is healing him along wirh modern medicine!

comments:  “don’t anybody tell me Don can’t see his kids! I understand the hospital policy but love trumps policy. I Will keep j in my arms in hall. Just one more day of CCU then that won’t be such an issue.May 8 at 3:17am”

Comments:  “Its just hard with all we are going through to wallk on the unit with the kids and have everyone look at you with that “why are those kids on this unit?” and I just want to shout. We are visiting their Dad! You don’t know what they saw at home with the medics….they need to see him and he needs to see them. Its part of our healing…Dons included!!!!!!!! Modern medicine is wonderful and so is love!!!!!!!!!!!!!!!!May 8 at 3:19am”

comments:  ” Its these little things that are tough on me right now. Seeing my needs more and. More as I am out of SURVIVE mode and now am moving on to other emotions and boy is it a roller coaster. But I got through him almost leaving us…I can get through anything now.May 8 at 3:22am”

May 8 at 4:13am

Sat May 14 is our 17th anniversary. I am so glad my honey is here with me! He was last in the hospital 17 years ago on our honey moon, ask us about that funny story. I love him so much.

comments:  I had a conversation with Harrison about cropping the picture for my profile picture and then about how Jason is doing.  my final comment back to him:   “Thanks. I can likely come home before he needs a nap and then come back over here. But while he is happy I will take some quiet time and be close to Dad. But will likely come home sooner rather than later for his nap…so I can nap too and then we can come back or at least I can or Ann can or something.May 8 at 9:00am”

May 8 at 4:23am

Happy Mothers DAy to my wonderful Mom! It was so helpful having you here when I needed you most. I wish I could find a picture of you to post as my profile, when I scan my pictures, all I find is the kids….:)
You are the best mom and the reason I am the mother than I am.
I love you Mom.

May 8 at 4:42am

I have started blogging about this because I know I have to and need to. And I don’t need to hide my writing but share it for anyone who wants to read it.

ginaslifejourney.wordpress.com

Perspective. Having your 51 year old healthy husband have a sudden heart attack and go in to cardiac arrest in your living room with 2 kids, age 2, 9 and 13 standing by (and thank God, the medics who had gotten there before he arrested) is a life altering experience to say the least.   …
Ahh…..talked to Dr. Iwoka. he is moving to step down today. things are going well. I like him for more than just saving the love of my love and best friend.

my reply to comments:   ” Thanks Adael! Happy Mothers Day to you. This was the most I got to talk with the doctor and watch him assess Don. Our nurse told us he was rated the Best Cardiologist. Helps to hear that. And I like how he answered my questions. It eases my mind.May 8 at 8:57am”

May 8 at 9:43am

Happy Mothers Day to all the mothers and those who act as caregivers and mothering roles….including my sister…the best big sister anyone could have

my comment:  “And my husband is included in this”

May 8 at 9:47am

*converstaion with Harrison about how Jason is doing and me waiting for them to move Don

May 8 at 10:03am

hanging in waiting area while Don tries to sleep..looking out window thinking ..one nurse told us CCU used to be labor and delivery and likely was 131/2 years ago when Harrison was born. he may have been born very near where Don is on CCU…has a spiritual kind of comforting feeling to me in a weird and maybe silly way….

May 8 at 10:10am

was able to peek in window and not click door…Don is sleeping so I am letting him rest. think ill take a walk and get my jacket in the car…its freezing in here!

May 8 at 11:14am

Jody posts a picture:

Princes Harrison and Jason with their crowns

May 8 at 12:05pm

Dad in his new room (picture)

May 8 at 12:26pm

Don is moved to Step down. things are good. great nurse here. think I will head home for a bit. this is a big step! yea!

May 8 at 2:04pm

and sometimes I need to cry and let it all out….I guess the whole thing is just beginning to sink in or are moving out of a state of shock…and over tired….I know all will be well but its ok too to say this really sucks

reply to comments:  “Yes tears are good…a release of energy and I an glad they are coming.May 8 at 4:12pm”

and another reply:  “Love all the hugs and thoughts…helps me outMay 9 at 12:33pm”

May 8 at 4:13pm

slept well and feel refreshed…boy I needed that. Ann and h and J<supposed to say A> going to see Don. me and J going soon yet cool to be home with just my J

May 8 at 7:32pm

don doing great! love his new nurses on 3D. going home for dinner with my family -1. don needs rest.

May 8 at 7:57pm

thinking about tomorrow and play mates for jason …

May 8 at 8:34pm

need to spend lots of time at hositsl next two days as Don may come home tuesdsy and I need to tslk to nurses.

May 9 at 4:41am

Out of shock and on to next stage. still counting all my blessings yet nervous about next steps of this endeavor.

didn’t get to finish my post…3D nursing staff is awesome! Presby hospital has been awesome. Feels good knowing he is in good hands there. He might be getting PT today! Eager to get to hospital and be there all dayMay 9 at 4:43am

May 9 at 5:17am

I am thankful for prolactin 🙂

May 9 at 8:18am

Don is tired today and has low grade fever. he sent me message but it wears him out to do so. can’t wait to go over to see him. kids are all still sleeping here as I BB next. to them…we are all in one room together.

May 9 at 12:39pm

at hospital with Don. he is resting but doing as expected. fever is not a concern. he will be going to cath lab tomorrow t0 have other blocked artery stinted. then will come back to room he is in now. it is about an hour procedure according to nurse (and Much easier this time since it is not an emergency)

May 9 at 5:01pm

home now. don is tired but doing well. we don’t know what time he will go to cath lab in the morning. 7am or later so I will be there by then. mom is coming back later tomorrow. got a friend who can come early and stay the day. I will be good to have the stint done to open the othwr artery and know that is behind us yet is a new venture to process and think about.

May 10 at 1:19am

got some sleep. my 3 angels are sleeping all next to me which feels so good. Ann visited Don tonight and he is doing well yet very tired. procedure sometime today…7am or later. ill be there and Will keep ya’ll posted. (I can’t believe I just wrote ya’ll…I must be a southerner now…been here 18 1/2 years!)

May 10 at 2:17am

Blogging again about this experience.

ginaslifejourney.wordpress.com

I sleep maybe 2 or 3 hours and then lay there with so many things going through my mind so I get up to get something done because there are many things to do.   …
reply to comments:  “Thank you. It means so much and I know all the energy and prayers are helping as much as modern medicine is. There are miracles happening every day all around me and I feel so blessed.May 10 at 2:40am”

This is part of an email I sent to a friend on May 9, 2011, just 5 days after my husband had a heart attack.  I have added some additional information in<> to clarify the message but otherwise kept the message as I typed it to my friend because I feel it shows the emotion I was feeling so early on in this experience.

“I think I was in shock for several days when this happened.  We had no idea he had issues other than his family history but he is the youngest of 6 siblings. We eat so healthy and he exercises…etc etc.  I don’t know how I got through him arresting in our home, thank god the medic was already here when he did and then waiting in the hospital for over 2 hours with my friend and kids, when we should have been home watching American Idol, and wondering if the doctor would come out and tell me he was dead.  I watch too many ER type shows, Gray’s Anatomy.  I didn’t even cry that first 24 hours or until I was driving back to CCU the next morning alone.
It is a relief to say these things.  I have great support in many ways but to be able to talk about this esp with someone who gets my parenting style , has good communication skills :)and with someone who has been there helps me a lot.  I know I need to call you.  Right now we are all nervous about him coming home. We want him home but after our traumatic 911 experience, <I’m nervous about him coming home to our family which includes>  my 9-year-old with OCD and my 13-year-old (his own much milder anxiety issues) and me.  I picture myself standing over him checking his vital signs every 30 minutes.  I am thankful I am and OT and feel fine with understanding his rehab, but the medical stuff scares the crap out of me.  I have to reassure my kids esp my daughter that we will have all the instructions we need from the hospital about signs to watch for but inside I am terrified.  I wish I could be with him 24/ 7 right now while he is in the hospital but feel safe   especially now that he is out of CCU with where he is .
ahh…wow…I do need to talk about this…and for me writing is even easier than talking…thus my blog  but I also need to call you and have someone who can really listen “